Ion Channel Foundations

Here is the list of ion channel foundations, associations, alliances and other nonprofits.

NameWebsiteInfoCountry
Alliance Syndrome de Dravethttp://www.dravet.fr/L'Alliance Syndrome de Dravet is an association of French-speaking parents of children with Dravet Syndrome. The mission of L'Alliance Syndrome de Dravet is to support the families, increase awareness as well as to support medical research.France
CACNA1A Foundationhttps://www.cacna1a.org/The mission of the CACNA1A Foundation is to raise awareness of the CACNA1A genetic variants as well as to support research and treatment options in order to make a difference in the lives of those affected by CACNA1A.USA
Clayton's Crusadehttps://twitter.com/ClaytonsCrusadeClayton's Crusade is a nonprofit organization that focuses on raising funds for and spreading awareness of SCN8A.USA
Cystic Fibrosis Foundationhttps://www.cff.org/The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care.USA
Dravet Syndrome Foundationhttps://www.dravetfoundation.org/The mission of Dravet Syndrome Foundation is to raise funds for Dravet syndrome and related epilepsies; to support and fund research; increase awareness; and to provide support to affected individuals and families.USA
FamilieSCN2A Foundationhttps://www.scn2a.org/FamilieSCN2A Foundation has been created with the goal to improve the lives of those affected by SCN2A related disorders through research, public awareness, family support and patient advocacy.USA
Genetic Epilepsy Team Australia (GETA)https://www.geneticepilepsyteam.com.au/Genetic Epilepsy Team Australia (GETA) is a group of parents whose children have rare genetic epilepsy. GETA's goal is to support the ground-breaking research that happens right here in Australia - from stem cells to mouse models to biotech and beyond.Australia
KCNMA1 Channelopathy International Advocacy Foundation (KCIAF)https://www.kciaf.org/The goal of KCIAF is to educate patients, families, the public and the scientific community about KCNMA1-associated conditions and to promote efforts to find effective treatments for the wide range of symptoms which can be caused by KCNMA1 mutations.USA
KCNQ2 Cure Alliancehttps://www.kcnq2cure.org/KCNQ2 Cure Alliance has been created with the mission to educate and to advance research leading to treatments or a cure for patients living with the genetic disorder KCNQ2 epileptic encephalopathy.USA
KCNQ2 e.v. associationhttps://kcnq2.de/en/KCNQ2 e.v. association has been founded to make information about KCNQ2 available to the public, to support research in this area and to help those diagnosed with KCNQ2 encephalopathy.Germany
KCNT1 Epilepsy Foundationhttps://kcnt1epilepsy.org/The KCNT1 Epilepsy Foundation aims to provide accurate information for parents and physicians about KCNT1 Epilepsy disease mechanisms, symptoms and treatment options. USA
Libellas International Foundationhttps://fundacionlibellas.org/Libellas International Foundation is a nonprofit patient advocacy organization dedicated to improving the lives of children affected by NALCN ion channel-related diseases, through research, family support programs and education.Spain
SCN2A Australiahttps://scn2aaustralia.org/SCN2A Australia is a group of parents whose children have SCN2A mutation. They work towards a cure for SCN2A, raising awareness and helping those working on or affected by SCN2A better understand this condition and live better lives. Australia
SCN2A Europehttps://www.scn2a.eu/SCN2A Europe would like to support the national communities and become an entry point for families, clinicians and researchers seeking information about SCN2A. Germany
The Cute Syndrome Foundationhttps://www.thecutesyndrome.com/The Cute Syndrome Foundation raises awareness of SCN8A mutations, funds the dedicated and talented scientists researching SCN8A, and supports the families around the world who are affected by this disorder.USA
The Jack Pribaz KCNQ2 Foundationhttps://www.jacksarmy.org/ http://kcnq2.org/The Jack Pribaz Foundation exists to help fund research on KCNQ2 gene and ultimately to assist the medical world in understanding the underlying causes of epilepsy. USA
Wishes for Elliotthttp://www.wishesforelliott.com/Wishes for Elliott is a family-based, non-profit organization dedicated to supporting research to improve the lives and prognosis of children struggling with SCN8A mutations.USA